According to the World Health Organization (WHO), “285 million people are estimated to be visually impaired worldwide: 39 million are blind and 246 have low vision.” Subsequently, 90% of those visually impaired live in low-income settings. What this entails is a two-fold problem in need of serious addressing. Not only a way to help the visually impaired to see, but equally a means of which is affordable to those who wouldn’t otherwise be able to.
At almost any minute of any day, your life could change drastically. Our bodies are fragile, our destinies determined second-by-second. Snap your fingers. That’s how suddenly what you have come to expect for yourself, or a member of your family, could change as the result of an illness or accident. What would it mean in terms of work, mobility, relationship, identity? How quickly or slowly would you adapt to a drastically new state of reality?
Four persons suspected of murdering an ‘albino’ have reportedly been arrested in Malawi. They allegedly abducted an ‘albino’ man from his village, killed him, removed his body parts and buried them in a riverbed. These horrific murders which have been taking place mainly in Tanzania seem to be spreading to this Southern African country, and it is important to rally Malawians against this horrendous practice before it is too late.
Over the past several years the Jewish custom of male circumcision, in which the foreskin of the penis is removed, has been increasingly compared to female circumcision, in which the clitoris and sometimes the labia are removed, and condemned as genital mutilation. This comparison demonstrates an abysmal ignorance of anatomy. The clitoris is analogous to the penis and the labia to the scrotum which are certainly not removed in male circumcision. The foreskin is comparable to the clitoral hood which is sometimes removed surgically in women in order to enhance sexual pleasure.
If you are one of those who think there is no connection between politics and the savage practice of albino killing in Tanzania, then you need to read the recent statement from the Deputy Minister for Home Affairs, Pereira Silima. Silima made it clear to politicians in the country that if they stopped patronizing the ‘witch doctors’ then this East African country might see an end to the shameful and horrific murders of albinos.
The people in Tanzania need to discard the belief that drives them to attack kidnap and kill people living with albinism.
Recently, I tuned in to watch a 60 Minutes television story on a experimental cancer treatment being tested that was being hailed as near miraculous. As I saw the face of one white patient after another white patient who was cured by injecting the polio virus into a brain tumor, I started to wonder: where are all the black people? Or Hispanics or Asians? It brought to mind the popular campaign and twitter hashtag, Black Lives Matter
As the measles outbreak grows, 173 cases since March 6th, most cases have been traced from the unvaccinated child in Disneyland, with additional outlier cases and it has become our latest national fascination with a bioethics issue.
When Reuters announced the successful deployment of the first Internet-enabled pacemaker in the United States, it was a dream come true for many. The news came late in the summer of 2009, three weeks after Carol Kasyjanski became the first American recipient of a wireless pacemaker that allowed her doctor to monitor her health from afar. Since then there has been a proliferation of Internet-connected personal medical devices, or iPMDs, which now include insulin pumps, glucometers, blood pressure cuffs, pulse oximeters, walking canes, and of course, the ubiquitous fitness wearables.
Recently a group of scientists and an industry group have issued statements calling for a moratorium on human heritable or germline genetic modifications (see here, here and here), now that we have the powerful CRISPR technique to pursue them. These statements have been greeted rapturously by bioconservatives, who want to see a global ban on germline and enhancement genetic therapies. Of course, transhumanists have been thinking about these things for a long time, and the World Transhumanist Association (now known as Humanity+) adopted a formal position on human germline genetic modification ten years ago.
Unwanted pregnancy is contributing to a new “caste system” in America. Is that about to get worse? When new and better technologies become available only to people who are already privileged, the rich get richer and opportunity gaps get wider. That’s exactly what’s happening with family planning—and unless trends change, a recent revolution in contraceptive technology may deepen America’s economic divide. Many factors intersect to create poverty or keep people mired there: racism, sexism, untreated illness and mental illness, hopelessness created by lack of opportunity, structural barriers between social classes, and more.
Position Paper: The Critical Need to Promote Research of Aging Below is the position paper on the Critical Need to Promote Research of Aging of the International Society on Aging and Disease (ISOAD). This paper briefly details the rationales, the technologies and the policies that are needed to promote this research. Thus it can serve as a generally applicable advocacy or lobbying paper in different countries. Please help spread it. Please contribute to the widest possible recognition and support of biological research of aging and aging-related diseases. We welcome the readers to circulate this position paper, share it in your social networks, forward it to politicians, potential donors and media, organize discussion groups to debate the topics raised (that may later grow into grassroots longevity research and activism groups in different countries), translate this position paper into your language, reference and link to it, even republish it in part or in full (for example, the policy recommendations can fit on a single page flyer), join the ISOAD or other aging and longevity research and advocacy organizations.
I’ve met Erik Parens twice; he seems like a thoroughly nice fellow. I say this because I’ve just been reading his latest book Shaping Our Selves: On Technology, Flourishing and a Habit of Thinking, and it is noticeable how much of his personality shines through in the book. Indeed, the book opens with a revealing memoir of Parens’s personal life and experiences in bioethics, specifically in the enhancement debate. What’s more, Parens’s frustrations with the limiting and binary nature of much philosophical debate is apparent throughout his book.
Today we enjoy basic conversations with our smart phone, desktop PC, games console, TV and soon, our car; but voice recognition, many believe, should not be viewed as an endgame technology. Although directing electronics with voice and gestures may be considered state-of-the-art today, we will soon be controlling entertainment and communications equipment not by talking or waving; but just by thinking!
Empathy draws on both mammalian circuits that we share with other animals and cognitive abilities that only appear to be present in our closest relatives, the great apes and and cetaceans, and ourselves. As with happiness and self-control, there is strong evidence that differences in our capacity for compassion and empathy are tied to differences in the brain structures and neurochemistries that they depend on.
Some people think that neuroscience will have a significant impact on the law. Some people are more sceptical. A recent book by Michael Pardo and Dennis Patterson — Minds, Brains and Law: The Conceptual Foundations of Law and Neuroscience — belongs to the sceptical camp. In the book, Pardo and Patterson make a passionate plea for conceptual clarity when it comes to the interpretation of neuroscientific evidence and its potential application in the law. They suggest that most neurolaw hype stems from conceptual confusion. They want to throw some philosophical cold water on the proponents of this hype.
While discussing the longevity gene therapy project we encountered various questions and observations that prompted us to broaden the project and slightly change it. Generally, all the comments can be reduced into 5 main points…
On November 1, 29-year-old Brittany Maynard took medication to end her life. This wasn’t an act of cowardice, nor due to some psychological condition. She ended her life because she wanted to die on her own terms, rather than suffer the eventually-fatal torment of terminal brain cancer. Her ability to legally commit suicide – or what she referred to it as “death with dignity” – was due to the state of Oregon’s “Death With Dignity Act.”
We knew the risks. But last year, after my wife and I had our genomes sequenced, what we learned was still alarming. Amongst my wife’s results was a genetic variant associated with a significantly increased risk of Parkinson’s disease. And the matter-of-fact statistic on risk came with little information on how to reduce it.
It is a risky business trying to predict the future, and although it makes some sense to try to get a handle on what the world might be like in one’s lifetime, one might wonder what’s even the point of all this prophecy that stretches out beyond the decades one is expected to live? The answer I think is that no one who engages in futurism is really trying to predict the future so much as shape it, or at the very least, inspire Noah like preparations for disaster.
Chief Operations Officer Andy Zawacki guides us through a tour of the Cryonics Institute (CI) facility as well as the whole process of cryo-preservation – from the moment that legal death is declared to the moment patients are placed in long term storage.
In a powerful article at the Atlantic, “Why I Hope to Die at 75,” Dr. Ezekiel Emanuel lined up facts and figures showing that much of the recent gain in human lifespan is about stretching out the process of decline and death rather than living well for longer. Most of us would love to live to 100 and beyond with our minds sharp and our senses clear, able to take pleasure in the world around us while contributing at least modestly to the happiness and wellbeing of others. But clear-eyed analysis shows that is not how most elderly Americans experience their final years.
Suspended Animation is a mean to preserve life by slowing or halting its processes, while not causing death. This is similar to natural occurring anabiosis, though carried out artificially in order to preserve human and non-beings. Currently there are two main means of suspended animation, Cryopresevation, dubbed Cryonics, and the less developed Ahydrobiosis. The former uses low temperatures or chemical fluid replacements, while the former uses desiccation in order to preserve an organism.
The limitations of cognitive enhancement drugs will soon be complemented and surpassed by brain machine interfaces. The most consumer accessible brain machine devices that provide some intellectual enhancement are neurofeedback and transcranial direct current stimulation. Genetic and tissue engineering may provide avenues for at least the repair of cognitive deficits, and perhaps enhancement. Progress in actual nano-neural brain-machine interfaces, which will require advances in miniaturization, materials and nanotechnology, will enable more profound enhancement.
IEET Fellow David Eagleman has written and will host a six hour television series on The Brain for PBS. The series will premeire in 2015, and deals with tough questions of ethics and emerging neurotechnologies.
I’ve been writing about the ethics of human enhancement for some time. In the process, I’ve looked at many of the fascinating ethical and philosophical issues that are raised by the use of enhancing drugs. But throughout all this writing, there is one topic that I have studiously avoided. This is surprising given that, in many ways, it is the most fundamental topic of all: do the alleged cognitive enhancing drugs actually work?
The ability to think clearly and make good decisions is on almost every society’s list of virtues. In this essay I discuss the debate over different aspects of intelligence, the degree to which they are shaped by genes, chemistry and society, and the role of intelligence in other virtues.
We can encourage empathy and compassion through social policy and individual practices. But fully realizing our capacities for empathy and compassion will require careful, nuanced neurotechnological intervention.