Genomics and the Healthcare System

2013-07-20 00:00:00

Should patients get the results of their genetic data in hospitals? How does it impact the mental health of the patient to receive genomic results? Joan Scott discusses the ethics of genomic data and the developing of regulations of the future. She gave this talk at the Genomics Forum May, 2013, titled "Managing Incidental Findings: Context Matters."

Ms. Scott is the Executive Director of the National Coalition for Health Professional Education in Genetics (NCHPEG) where she leads the national effort to promote health professional education and access to information about advances in human genetics, and a Research Scientist in the Berman Institute of Bioethics at The Johns Hopkins University where she studies public and stakeholder attitudes about genomics.





Ms. Scott’s career has focused on the application of genomic discoveries to health care. She is a certified genetic counselor with more than 30 years experience in clinical genetics, genetics education, laboratory medicine, the biotechnology industry, and the ethical, legal, social, and policy implications of advances in genomics. Prior to coming to NCHPEG, Ms. Scott was Director of the Genetics and Public Policy Center at Johns Hopkins University which was established to fill an important niche in the science policy landscape. There she led the Center’s efforts to address policy issues related to advances in genetics, genetic testing quality and oversight, and public engagement in genetic research.

Prior to coming to the Center in 2002, Ms. Scott was a director in a GeneLogic, Inc. overseeing the operations of a large biorespository for use in genomic discovery. She also has served as general manager and director of Genetic Services at the clinical diagnostic lab OncorMed from 1994-1998. Clinically, she has practiced in a variety of academic, outreach, and private practice settings, including pediatric, adult, and reproductive genetic clinics.

Ms. Scott is a past president of the National Society of Genetic Counselors and founding member of the American Board of Genetic Counseling. She has served on numerous national committees and work groups including the Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group; the Secretary’s Advisory Committee on Genetics, Health, and Society Task Force on DTC Genetic Testing; the Maryland Insurance Administration Workgroup on Genetic Testing; the National Cancer Institute’s CaHUB Advisory Committee; the Center for Translational and Policy Research on Personalized Medicine Advisory Committee at the University of California, San Francisco; and the Genetic Alliance Biobank Advisory Board.

Ms. Scott holds an M.S. (Human Genetics Program) from Sarah Lawrence College and a B.A. in Anthropology and Zoology from Kent State University. She has been certified by the American Board of Medical Genetics with a subspecialty in Genetic Counseling, and was recertified by the American Board of Genetic Counseling in 2006.

Should patients get the results of their genetic data in hospitals? How does it impact the mental health of the patient to receive genomic results? Joan Scott discusses the ethics of genomic data and the developing of regulations of the future. She gave this talk at the Genomics Forum May, 2013, titled "Managing Incidental Findings: Context Matters."

Ms. Scott is the Executive Director of the National Coalition for Health Professional Education in Genetics (NCHPEG) where she leads the national effort to promote health professional education and access to information about advances in human genetics, and a Research Scientist in the Berman Institute of Bioethics at The Johns Hopkins University where she studies public and stakeholder attitudes about genomics.





Ms. Scott’s career has focused on the application of genomic discoveries to health care. She is a certified genetic counselor with more than 30 years experience in clinical genetics, genetics education, laboratory medicine, the biotechnology industry, and the ethical, legal, social, and policy implications of advances in genomics. Prior to coming to NCHPEG, Ms. Scott was Director of the Genetics and Public Policy Center at Johns Hopkins University which was established to fill an important niche in the science policy landscape. There she led the Center’s efforts to address policy issues related to advances in genetics, genetic testing quality and oversight, and public engagement in genetic research.

Prior to coming to the Center in 2002, Ms. Scott was a director in a GeneLogic, Inc. overseeing the operations of a large biorespository for use in genomic discovery. She also has served as general manager and director of Genetic Services at the clinical diagnostic lab OncorMed from 1994-1998. Clinically, she has practiced in a variety of academic, outreach, and private practice settings, including pediatric, adult, and reproductive genetic clinics.

Ms. Scott is a past president of the National Society of Genetic Counselors and founding member of the American Board of Genetic Counseling. She has served on numerous national committees and work groups including the Evaluation of Genomic Applications in Practice and Prevention (EGAPP) Working Group; the Secretary’s Advisory Committee on Genetics, Health, and Society Task Force on DTC Genetic Testing; the Maryland Insurance Administration Workgroup on Genetic Testing; the National Cancer Institute’s CaHUB Advisory Committee; the Center for Translational and Policy Research on Personalized Medicine Advisory Committee at the University of California, San Francisco; and the Genetic Alliance Biobank Advisory Board.

Ms. Scott holds an M.S. (Human Genetics Program) from Sarah Lawrence College and a B.A. in Anthropology and Zoology from Kent State University. She has been certified by the American Board of Medical Genetics with a subspecialty in Genetic Counseling, and was recertified by the American Board of Genetic Counseling in 2006.

http://www.youtube.com/watch?v=CDvB9-9B8WUfeature=c4-overviewlist=UU8NBVtSJ9AXgHOixxNYD9bw